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real talk need life advice

scottcu

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Sep 29, 2005
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living with ALS. So i essentially was told today that I am out of money by my father who i gave poa to and he advised that I cut any nonessential spending luckily i already re-upd my warchant subscription. I have always prided myself on my credit score (810) ive never missed a payment but at this point I have four cards all with a zero balance and I am not married. Should i have some fun maxing the cards out? The cc companies can't go after my parents or anyone right? Based on my progression the odds are not great that I live much longer. this is question one will have more questions
 
They can not go after anyone else for any credit debt you leave behind. It's a write off fir them anyway. Go nuts bro.
 
So you can't travel? I would hire some hot chick to push me around as I travel the world.

Also no disability and social security benefits?
 
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The standard answer is hookers and blow. As you are not able to travel (I am guessing), most entertainment or pleasures are at your home... open the door.

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Seriously dude, get wild a little, because I guarantee you that years from now when the !@#$ is really hitting the fan you will look back with regret at the things you didn't do. I'm been in a wheelchair for 27 years (next week actually) and while there's not much excitement in my life now (actually the way I like it), my 20's was completely nuts.
 
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unfortunately >&) # hit the fan for me pretty fast, the only part of my body i can control is my eyes. A machine breathes for me and I eat thru a tube in my belly. I
 
unfortunately >&) # hit the fan for me pretty fast, the only part of my body i can control is my eyes. A machine breathes for me and I eat thru a tube in my belly. I
Then if your eyes and your mind are still good, use those credit cards to fill them with the best sights and memories that you can.

If that means using the money to hire some 20 year old hot "nurse" to help you take a trip, then do it. If it means staying home and filling the house with strippers who'll do nasty things to themselves/each other for your benefit, then do it (and post pics here).

Do whatever you need to do to get all the life you can out of the time that's left.
 
unfortunately >&) # hit the fan for me pretty fast, the only part of my body i can control is my eyes. A machine breathes for me and I eat thru a tube in my belly. I

Damn dude, that SUCKS! I couldn't imagine.

Then if your eyes and your mind are still good, use those credit cards to fill them with the best sights and memories that you can.

If that means using the money to hire some 20 year old hot "nurse" to help you take a trip, then do it. If it means staying home and filling the house with strippers who'll do nasty things to themselves/each other for your benefit, then do it (and post pics here).

Do whatever you need to do to get all the life you can out of the time that's left.

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Scottcu, I am very sorry to hear about this. I had a buddy who had ALS. I would go and sit with him and talk or help anyway that I could. My advice is going to be different. My friend rededicated this life to Jesus and he left this life in peace to a much better life in heaven. This is not the "religion and politics" board, so I'll leave it at that. I would be happy to correspond if you would like.
 
my girlfriend still lives with me she's only 26 and is pretty hot! She is the only reason I ever smile. As for Jesus I cant fathom how anyone with ALS can still be a believer, i find myself getting angry anytime someone says god loves you, if he does exist he absolutely does not love me, i must have been a serial rapist in a past life to deserve this. Sorry that is probably too much god talk.
 
I am going to add one more thing to try. Stem Cell therapy. Go to some country and get it done at what ever cost it takes. You would be surprised at the results that are being done on these types of diseases.

OR just do what @NDallasRuss said, but don't post pictures here as that would get you banned. We will all help you work the pictures posting later....
 
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First off I am so sorry that you've experienced this terrible disease. You're not asking for sympathy, but my heart goes out to you.

Secondly, I agree with others. Go enjoy whatever life you can. Fill those amazing eyes you still control with as much beauty and joy and love that you can muster. Find joy in whatever areas you can and screw the CC companies and banks. They certainly do the same to you.
 
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Thanks for spending some of the time you've got left with us, Scott. I suspect I speak for many when I say it's an honor.

(Though it does show that you've got HORRIBLE taste in friends :p:D)
Les Horribles. That has a nice ring to it.
 
unfortunately >&) # hit the fan for me pretty fast, the only part of my body i can control is my eyes. A machine breathes for me and I eat thru a tube in my belly. I

Scott,

It does sound like you are a bit tethered to home, but....do you have the ability to get in a jet or more modest modes of transportation? It sounds like your gf has stuck with you through thick and thin, so if you still have mobility, both of you should jump on some bird (1st Class naturally) and go places you've never seen before. Your remaining joy appears to come through your eyes, go soak in the beauty of the US and the World if possible. All my best...
 
my girlfriend still lives with me she's only 26 and is pretty hot! She is the only reason I ever smile. As for Jesus I cant fathom how anyone with ALS can still be a believer, i find myself getting angry anytime someone says god loves you, if he does exist he absolutely does not love me, i must have been a serial rapist in a past life to deserve this. Sorry that is probably too much god talk.

Scottcu, you don't deserve this and God certainly does love you exactly the way you are now.

I've seen how horrible ALS is to a person. I can say that my buddy was angry for quite a while. Anyone would be. I did see a miraculous change in him and he ended up encouraging many others during his battle.
 
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the girlfriend is the next bit of advice I need, we've been together for 6 years, she just graduated college i told myself that when she graduated I would make her move on. Before all this we were looking at houses and I was close to proposing but when things started going south i couldn't propose and trap her, she made me promise to not push her away when I was diagnosed but I don't think she ever imagined that it would be this bad. She is only 26 it is time for her to move on i cant make her waste her prime years,
 
the girlfriend is the next bit of advice I need, we've been together for 6 years, she just graduated college i told myself that when she graduated I would make her move on. Before all this we were looking at houses and I was close to proposing but when things started going south i couldn't propose and trap her, she made me promise to not push her away when I was diagnosed but I don't think she ever imagined that it would be this bad. She is only 26 it is time for her to move on i cant make her waste her prime years,

Don't push her away, if she wants to stay, allow it. If it becomes too much for her, I think she will let you know. Enjoy your time together.
 
the girlfriend is the next bit of advice I need, we've been together for 6 years, she just graduated college i told myself that when she graduated I would make her move on. Before all this we were looking at houses and I was close to proposing but when things started going south i couldn't propose and trap her, she made me promise to not push her away when I was diagnosed but I don't think she ever imagined that it would be this bad. She is only 26 it is time for her to move on i cant make her waste her prime years,
Let her be there for you. Later on she'll look back at it as something good that she did and it'll make her glad she was able to be there for you. Don't take that away from her.

You don't have to marry her, but I'd certainly want her to be there, especially if she's made it clear she wants it too.
 
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Scott,

Lots of questions...LMAO. This is from the Internet so it must be true...not related to ALS, but crawling looks to be in play.

TD

“Usually paralysis is caused by damage to the spinal cord, and the brain can't send signals to the body.

In most depictions of zombies, the dead corpse is reanimated, the brain regains basic functions. But most damage to the body remains the same, and isn't regenerated or repaired.

We see limping zombies, zombies with detached arms, etc. I'm sure the spinal damage won't be fixed.

If the victim was confined to a wheelchair, their zombie form would probably be a "crawler" zombie.”
 
darn, so id be an ankle biter
This still seems like it'd be preferable to being one of the zombies with missing appendages. I mean, you'd be a zombie, so it's not like you'd be in a big hurry anyway.

So it takes you longer, and you might not be able to get to the brains that are up on the top shelf. I still think you'd find the pickings closer to the ground better than those that you'd be reduced to if you had no arms with which to pick them up.
 
the girlfriend is the next bit of advice I need, we've been together for 6 years, she just graduated college i told myself that when she graduated I would make her move on. Before all this we were looking at houses and I was close to proposing but when things started going south i couldn't propose and trap her, she made me promise to not push her away when I was diagnosed but I don't think she ever imagined that it would be this bad. She is only 26 it is time for her to move on i cant make her waste her prime years,

I think I would be honest with her. Let her know that you love her, and because you love her it kills you to see her "Waste her prime years". If she chooses to stay, you will not push her away, but that you truly want her to know that she is free to move on, that you want that for her to be free to have a great life. If she chooses to stay, then let her and love her for it. If she chooses to go on, then wish her well and make certain she does so guilt free.

You're an amazing human being and you're dealing with this in a far better way than I think I could.
 
By the way - I'm curious about this. How does it work? Do you wear glasses with a heads-up display?

Is it faster, or slower, than traditional typing? Is it pretty accurate?

it's a 15k computer made by tobii dynavox, and it uses what is called eye gaze technology basically it's a sensor that tracks my eyes, i have to focus on a word or letter. Takes time
 
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it's a 15k computer made by tobii dynavox, and it uses what is called eye gaze technology basically it's a sensor that tracks my eyes, i have to focus on a word or letter. Takes time
Wow - that's pretty amazing that it can do that!

Is it predictive so that it works to guess the words you're typing and save you from getting to every single letter?
 
yes and its amazing how accurately it can guess what I'm trying to say
That's very cool.

Hopefully it's not too judgey when you're trying to eye-spell some objectionable search terms. Like you're trying to spell out "lesbian corpse sex videos" and it comes back with "did you mean to say "should I go to church?"".
 
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